My niece was diagnosed with gestational diabetes. What a way to start off this post. GD is not a good thing. However she didn't have GD. They did give her a ton of supplies when she was diagnosed. She was given an acuvue aviva meter, 10 boxes of the multi-clix refills for the finger poker, and over 500 strips.
She brought them all to me.
I'm just giddy. It may seem like such a small thing, but it's huge.
I'm going to take the meter and strips and a few boxes of the multi-clix to the school. It will be enough to get them through to the end of the school year. One less thing to worry about.
As for my niece. She gave birth to a beautiful baby girl. She was a few weeks early and spent a week in the NICU. Both are doing well.
Tuesday, May 26, 2009
Monday, May 11, 2009
I am angry.
In fact I'm pissed the fuck off.
I have a 6 year old child with a life long illness that could possibly kill her. It could kill her in her sleep tonight, or tomorrow at school, or the next day on the baseball field. It probably wont, but it could.
Her friend told her: The die in diabetes means you can die. She came to me crying, worried that she might die. How do you explain that to a 6 year old? You can't. Or I can't. Because while it's not true that the die in diabetes means she could die. She really could die from this.
I have a 6 year old child who has to get 5 shots ever single day. That's 5 shots a day 365 days a year. That is 1825 shots a year. That doesn't include days where she gets more than 5 shots. She has to poke her fingers, her tiny little fingers, 10 times a day, 3650 times a year.
It doesn't stop her. Not for 1 second. Today at baseball I checked her blood sugar. The reading came back at 54. I gave her chocolate. she came back up to 99, I gave her a bit more chocolate. What I wanted to do was pack her in my car and run home. But she had a game to play. We can't let the diabetes rule her life, she has to play baseball, she has to play soccer, she has to be a kid. But I was so scared. I treated her and sent her back out to play.
So yeah I'm angry. I'm also scared. Scratch that I'm terrified. At some point your kids get older and you get to sleep through the night. But I don't. I wake up ever night to check her blood sugar to make sure she's not too low. If she's low I get her to sip some juice. If she's high I get her up to go pee.
We have a mini jansport that we carry everywhere. In it is: Insulin, needles, meter, fruit snacks, alcohol swabs, and glucogon. If she were to go into a diabetic coma I'm supposed to jab her with this glucogon needle. Will I be able to do so? I have no clue. I hope so. Every single time I leave my house I have to be prepared for the worst. I have no choice in the matter. http://www.type1parents.org/t1d/modules.php?name=News&file=article&sid=36
I have a 6 year old child with a life long illness that could possibly kill her. It could kill her in her sleep tonight, or tomorrow at school, or the next day on the baseball field. It probably wont, but it could.
Her friend told her: The die in diabetes means you can die. She came to me crying, worried that she might die. How do you explain that to a 6 year old? You can't. Or I can't. Because while it's not true that the die in diabetes means she could die. She really could die from this.
I have a 6 year old child who has to get 5 shots ever single day. That's 5 shots a day 365 days a year. That is 1825 shots a year. That doesn't include days where she gets more than 5 shots. She has to poke her fingers, her tiny little fingers, 10 times a day, 3650 times a year.
It doesn't stop her. Not for 1 second. Today at baseball I checked her blood sugar. The reading came back at 54. I gave her chocolate. she came back up to 99, I gave her a bit more chocolate. What I wanted to do was pack her in my car and run home. But she had a game to play. We can't let the diabetes rule her life, she has to play baseball, she has to play soccer, she has to be a kid. But I was so scared. I treated her and sent her back out to play.
So yeah I'm angry. I'm also scared. Scratch that I'm terrified. At some point your kids get older and you get to sleep through the night. But I don't. I wake up ever night to check her blood sugar to make sure she's not too low. If she's low I get her to sip some juice. If she's high I get her up to go pee.
We have a mini jansport that we carry everywhere. In it is: Insulin, needles, meter, fruit snacks, alcohol swabs, and glucogon. If she were to go into a diabetic coma I'm supposed to jab her with this glucogon needle. Will I be able to do so? I have no clue. I hope so. Every single time I leave my house I have to be prepared for the worst. I have no choice in the matter. http://www.type1parents.org/t1d/modules.php?name=News&file=article&sid=36
Saturday, May 2, 2009
Denied
I'm not surprised, just disappointed. I don't know why I would think the ins company might actually have my child's best interest at heart. It is obvious that they don't give a flying fuck about the health of my child.
The denial states that the request didn't come from the special care center.
We are seeing the Dr. who saw Vivian at the hospital. She works out of a hospital in Reno. We got permission from California Children's services to continue to see her, and that she is a CCS approved provider. She is a pediatric endocrinologist, the only one in the area in fact.
The special care center, which I have not been able to get an appt for, is 3.5 hours away. I have called them and never heard back. it really pisses me off.
So I have to take her to a Dr. she has never seen, and wont see again for another year. I have to hope that this Dr. who isn't following her care will put in a request for an insulin pump. I spoke to the diabetes educator and she said that most likely they will, but like everything else I'm not holding my breath.
The denial states that the request didn't come from the special care center.
We are seeing the Dr. who saw Vivian at the hospital. She works out of a hospital in Reno. We got permission from California Children's services to continue to see her, and that she is a CCS approved provider. She is a pediatric endocrinologist, the only one in the area in fact.
The special care center, which I have not been able to get an appt for, is 3.5 hours away. I have called them and never heard back. it really pisses me off.
So I have to take her to a Dr. she has never seen, and wont see again for another year. I have to hope that this Dr. who isn't following her care will put in a request for an insulin pump. I spoke to the diabetes educator and she said that most likely they will, but like everything else I'm not holding my breath.
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