I post on a mommy message board. When she was diagnosed that was the first place I went. I've been posting away with many of those women since 1999 when I was pregnant with Titus. Right now they are having to prune their data base. I went in and grabbed my posts about Viv, here they are.
12-9-08
My daughter was diagnosed with Diabetes
We were diagnosed within the past few hours. Somewhere around 8:30 pm on the 8th of Dec.
Yeah. I don't know what to say. I'm too tired to think really and my head is spinning.
12-10-08 3:59am
OK it's 3 am. I'm sitting here in the basement of the Ronald McDonalds house waiting for clean socks and underwear. At some point I'm going to have to go home and get some clean pants, though I have considered checking savers to see what they have.
Vivian is doing well. We caught this early. The ER doc back home was surprised her levels were so high yet she was doing so well. He transferred us immediately over to for treatment. We left Portola around 9:00 and were in our room in Reno by midnight.
She didn't have any ketoacidosis or any other complications from the high blood sugar, well other than not feeling well. So now all the stomach issues and everything else all make sense. All together they equaldiabetes. Each separate issue though is just whatever KWIM. If I saw them all again I would know.
The pediatrician here was also surprised because she isn't sick, she wasn't sick when I brought her in. He said he thought they missed something because she should have been. My baby girl is a medical anomaly. and Thank god or whoever is out there. Things could have been so much worse, but they weren't.
Everyone in town talks shit about the hospital there in ***, but I have never had anything but good care there. Sure it's a small town and they couldn't deal with Vivian at all, but they did see the issue and made sure she got timely care. I walked into the ER in **** a little after 8:pm. By 9: we were diagnosed and on our way to a place that could treat us. For an ER that is nothing.
So here's the thing. I would not have taken her to the ER monday night. In fact I pulled into the ER and pulled out again because it seemed so stupid to take my kid to the ER for a stomach ache. But she had been complaining about it so much, and I've always been scared of one of my kids dying from appendicitis. So I pulled in and then out. As I was leaving I remembered my friend Hillary who died of appendicitis. Her mom sent her to bed with some aspirin the night she died and she never woke up. Thank you Hillary maybe?
I'm tired and rambly, and waiting for clean clothes. I have finals this week. I just have so much happening so rapidly that I can't think straight.
12-9-08My daughter was admitted to the hospital
at 10 pm. I'm wide awake and terrified.
She was admitted with a blood sugar level of 716. She has juvenile diabetes. The nurses say we caught it super early.
She was complaining of a stomach ache and a sore throat. I'd noticed her peeing the bed more and she peed her pants a couple of times. You know I've complained about it on here recently. So I thought she had either Strep or Bladder infection.
I took her to the ER. I have 2 choices here in my town, go to the Ped, or go to the ER. It was 8:00 or so and I just thought I'd better take her in just to be sure. She walked in all cheery.
the did a UA and found sugar so tested her blood.
The sent us to the city for the peds ICU. We'll be here for a few days.
12-9-2008 7:00pm
716 is high. Her Hemoglobin A1C is 11.5 And the fact that she had no ketoacidosis is apparently remarkable. The ER doc was surprised to find her levels that high. When we got here she was good, right about 360. They gave her some insulin and she's had an IV drip since the first ER.
Right now she's sleeping.
They are thinking she's had it 3-6 months.
Yes everything that I've taken her to the Dr. for in the past few months have all been manifestations of this. The stomach aches and throwing up were the first symptoms she had. Then the increased bed wetting, which didn't really trigger anything for me, she's always peed the bed.
Nobody in my family has it, nobody in my husbands family has it. We just had no clue what we were looking at.
We are staying at the ronald mcdonald house. We'll be here all week becoming experts on diabetes.
12-9-08 7:17
I'm telling you. I took her to the ER last night expecting an UTI. Or maybe some strep throat.
I never in a millions years would have thought diabetes.
On a happy note, this will probably fix her peeing problem. Forgive me. I've slept 5 hours in the past 24 hours, and I haven't really eaten anything.
At least you can't fall out of the basement window.
Saturday, July 18, 2009
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